Loving & Living With Someone Who Suffers
from Bipolar Disorder
There is much written in medical journals about bipolar
disorder. We know the symptoms and diagnostic criteria. There are literally
volumes of books written on bipolar disorder, but I have rarely come across
material to help people of those who love and live with family members who
suffer from bipolar disorder.
Do you recall the movie TWISTER from the 90’s? The movie
depicted storm-chasers in their quest of seeing and studying an F-5 tornado.
The F-5 tornado in the movie was nick-named “The Defender of God”. The
destruction was deadly. The tornado brought devastation and destruction that
had no equal comparison. There are few survivors of a tornado of this
magnitude. And now you may be wondering
what does any of this have to do with bipolar disorder? I want you to imagine what you would do in the
instant you get a warning that a tornado was on the ground and within a
half-mile of your home. Close your eyes
and sit with image for a moment. What do you do?
Now, imagine one step further. What if you had no notice at
all? What if, while you were at home, a tornado dropped out of nowhere and you
had no advance warning-- what would you do then? No warning, no preparation, just basic
survival instinct—what would you do?
This is how many loved ones of a person suffering with bipolar describe
their daily lives at home.
One mother actually used the image of the tornado. She said, “I live 24/7 with a tornado on the
ground in my home. I never know what I am going to find when I come home.” She
described the sheer terror and torment of loving someone with all her heart
whom she also lived in fear of—for her own safety and the safety of the bipolar
adolescent.
Another family describes having to arrive home an hour
before the rest of the children got home from school to make sure their child
with bipolar disorder had not commit suicide and been left for the siblings to
find. Suicidal attempts and self -harming
behaviors are common problems for those suffering from bipolar disorder--and
were a constant battle with this family. The mom also described how in an instant
the suicidal thoughts could turn to violent behaviors towards other family
members. Ultimately this family had to install an internal alarm system in their
home to sound a siren when the child’s bedroom door or window was opened so the
family would be alerted to the child’s movements because no one ever knew if
she would be suicidal or inflict harm to someone else in the family.
The American Academy of Child and Adolescent Psychiatry
recently reported that research
has improved the ability to diagnose bipolar disorder in children and teens.
Prior to this recent research, children and teens with bipolar disorder were
diagnosed with oppositional defiance disorder --and the official bipolar
diagnosis was reserved for those over the age of 21.
Adults
suffering with bipolar often have similarly frightening displays of symptoms.
An eleven- year-old boy described how court-ordered visitations with his
mother, who suffers from bipolar, left him feeling like he was having to parent
his parent and monitor her safety with her frequent suicidal threats. He
learned when her episodes were bad to go across the street to the convenience
store and have the clerk call the police. They would transport him to his father’s home and
the police would be the adult-help to check on the safety of his mother. This was a survival skill for the boy, but it
provided a written report for the court to show the depth of damage being done
to the child with unsupervised visitation with a mother who was not medication-compliant
with her illness.
Another
common display of bipolar symptoms that affect the family is out-of-control and
compulsive spending during the manic phase of the illness. Many families have
lost their homes, filed bankruptcy and even lost their marriages do to the
inability of knowing how to live with a constant tornado on the ground that is
ravaging destruction in their homes on a daily basis.
So what is a
family to do?
·
Develop a family safety plan during a time when
the loved one’s bipolar symptoms are manageable and they are not acting out
·
Educate the family by attending a support group
for family members of bipolar loved ones
·
Get the bipolar loved one to sign consent forms
(if they are 18 or older) for their medical professionals to be able to discuss
their medical condition with the family members. Often times when a bipolar loved one goes to
a medical appointment they often report that “things are fine” because they
have acclimated that the behaviors have become their normal. But the
perspective of a family member of what home-life is like from a different point
of view may be beneficial to both doctor and family.
·
Set clear and firm boundaries of what will be
acceptable and what is not—and be consistent with the consequences of broken
boundaries
·
Have a preventative plan of action in place of
how to encounter bipolar anger. It will surface. You want to know, and have
practiced, how to handle such situations so as not to escalate the problem by
responding from your own initial shock and anger.
·
Seek family counseling. It is helpful to have
someone from outside the family offer perspective and insights that will help
the family maintain effective communication, problem-solving skills, and to
develop safety plans and family contracts. It also is helpful for spouses,
siblings, etc. to have their own point of view and feelings heard and
understood by someone who can validate their experience and help give them
survival tools to navigate family life with a bipolar loved one.
·
LOVE your bipolar family member with your whole
heart. They did not ask for-- or want to struggle with this illness. Keep in mind that this is an ILLNESS—it is
not just bad behaviors and bad choices. They are being held captive and
tortured by their own mind. It’s just
not as simple to say “it’s all in their head”. It is a medical condition that
can be successfully treated with consistent medication-compliance and therapy.
One fact cannot be overlooked:
Every family that has a bipolar loved one is hurting—including the one
suffering from bipolar disorder. The bipolar patient is living in their own
place of pain the family will probably not fully understand. Likewise, the
bipolar loved one will likely not fully appreciate what their family members
have experienced as a result of the illness that plagued the one they so deeply
love and want to understand.
I will end with this quote by Kay Redfield
Jamison from her book An Unquiet Mind: A
Memoir of Moods and Madness:
“There is a particular kind of pain, elation, loneliness,
and terror involved in this kind of madness. When you're high it's tremendous.
The ideas and feelings are fast and frequent like shooting stars, and you
follow them until you find better and brighter ones. Shyness goes, the right
words and gestures are suddenly there, the power to captivate others a felt
certainty. There are interests found in uninteresting people. Sensuality is
pervasive and the desire to seduce and be seduced irresistible. Feelings of
ease, intensity, power, well-being, financial omnipotence, and euphoria pervade
one's marrow. But, somewhere, this changes. The fast ideas are far too fast,
and there are far too many; overwhelming confusion replaces clarity. Memory
goes. Humor and absorption on friends' faces are replaced by fear and concern.
Everything previously moving with the grain is now against-- you are irritable,
angry, frightened, uncontrollable, and enmeshed totally in the blackest caves
of the mind. You never knew those caves were there. It will never end, for
madness carves its own reality.”
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Dawn,
ReplyDeleteThanks so much for sharing such an incredibly thoughtful and informative article! You have allowed us to see through the eyes of family members who know what it means to have a mother, father, son, or daughter who lives with Bipolar. This article truly does teach loved ones how to "LOVE your bipolar family member with your whole heart".
Cecily Rodgers, LPCi